Barbara Newhouse began her tenure with The ALS Association in June of 2014, just 6 weeks prior to the beginning of the Ice Bucket Challenge. The IBC was an organic event that started with 3 young men with ALS. Under Barb’s leadership, The ALS Association followed the lead of Anthony, Pat, Pete sharing on a daily basis how the Ice Bucket was making a difference in both raising awareness and funding for research and care programs. Ice Bucket was a game changer for The ALS Association!
Under Barb’s leadership, The ALS Association was able to produce the patient centric FDA Guidance Document, opening the door for the first ALS drug to be approved in 22 years. Additionally, the organization developed a nation wide strategic plan that integrated all mission areas including research, care services, and advocacy. Until Barb left the Association, she continued to lead efforts in the area of change management, strategic implementation, and increased understanding of governance as opposed to management. Today, she now runs her own consulting firm concentrating on those same areas.